“Born in Chicago on May 2, 2002, Alec was diagnosed before birth with osteogenesis imperfecta — a rare genetic disorder more commonly known as brittle bone disease. It causes bones to break easily, and Alec has endured over 60 fractures in his life. But that hasn’t stopped him from living with purpose and heart.
At just 22 years old, Alec has already made a powerful mark. Many recognize him as the beloved spokesman for Shriners Hospitals for Children, where he began as a patient. Since appearing in their TV spots a decade ago, donations have soared — helping countless children receive free, life-changing care.
But Alec’s story doesn’t stop there. This summer, he proudly graduated from Northwestern University with a degree in journalism. He’s interned with WISN-TV and the Indiana Pacers, and he’s even appeared on national sports shows like Inside the NBA and the NCAA Final Four.
A passionate wheelchair basketball player and dedicated Chicago sports fan, Alec dreams of becoming a sports broadcaster — and with his drive, there’s no doubt he’ll get there.
He’s also using his voice to advocate for greater wheelchair accessibility on campus, making sure others have a smoother path to follow.
Alec lives in Oak Park, IL with his four sisters, and he continues to inspire not only as a spokesperson, but as a symbol of resilience, advocacy, and hope.
Sharing to celebrate a true modern-day hero.
Because some people don’t just face life’s challenges — they rise above them, and help others along the way.”
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